Paolucci, Alessandra Nielssen, Ingrid Tang, Karen L. Sinnarajah, Aynharan Simon, Jessica E. Santana, Maria J.
Published in
Palliative Care and Social Practice
Background: Palliative care (PC) is an added layer of support provided concurrently with cancer care and serves to improve wellbeing and sustain quality of life. Understanding what is meaningful and a priority to patients, their families, and caregivers with lived experience of cancer and PC is critical in supporting their needs and improving their...
Kennedy, Aaron C. Jones, Daryl A. Eastwood, Glenn M. Wellington, Duncan See, Emily Lewis, Jane E.
Published in
Palliative Care and Social Practice
Objective: Improve documentation quality of end-of-life family meetings in a tertiary intensive care unit (ICU). Design: Before-and-after interventional quality improvement project between October 2018 and February 2020 utilising an electronic pro-forma record. Setting: Australian, University affiliated, mixed medical-surgical 22 bed adult ICU. Par...
Variath, Caroline Peter, Elizabeth Cranley, Lisa Godkin, Dianne
Published in
Palliative Care and Social Practice
Background: In Canada, under Bill C-14, patients who met all eligibility requirements were prevented from accessing medical assistance in dying (MAiD) following their loss of decision-making capacity while awaiting MAiD. The changes introduced with Bill C-7 continue to limit access to patients who did not enter a waiver of final consent agreement w...
Donovan, Leigh A Slater, Penelope J Delaney, Angela M Baggio, Sarah J Herbert, Anthony R
Published in
Palliative care and social practice
The greater proportion of children with a life-limiting condition (LLC) and their families want to remain at home as much as possible. Building capability in paediatric palliative care (PPC) for generalist health and social care professionals in nonmetropolitan regions through the Quality of Care Collaborative Australia (QuoCCA) has improved access...
Gomes-Ferraz, Cristiane Aparecida Rezende, Gabriela Fagundes, Amanda Antunes De Carlo, Marysia Mara Rodrigues do Prad...
Published in
Palliative Care and Social Practice
The promotion of comfort and quality of life of people with cancer in palliative care requires flawless evaluation and management of pain, understood in its multidimensionality and integrality. The objective of this study was to present an overview of the scientific production referring to evaluation of the pain and total pain of patients with adva...
Neto, Isabel Galriça
Published in
Palliative Care and Social Practice
Introduction: After more than 25 years working in palliative care (PC) observing thousands of patients and family behaviors, I use my long experience and notes as a source of data for a qualitative research study. The aim is to identify frequent families’ behavior patterns in PC and better describe the culture in PC. Methods: This article is part o...
Rawlings, Deb Miller-Lewis, Lauren Tieman, Jennifer Swetenham, Kate
Published in
Palliative Care and Social Practice
Context: Death Doulas are working globally to provide non-medical end-of-life care. They have different training experiences and views on the role and whether it should be standardised. Objective: To seek the views of organisations responsible for training Death Doulas in order to determine what the drivers are behind this emerging role. Methods: W...
Simpson, Mary Louisa McAllum, Kirstie Oetzel, John Berryman, Kay Reddy, Rangimahora
Published in
Palliative care and social practice
There is growing interest in palliative care within Indigenous communities, and within Aotearoa New Zealand, of the significant role that Māori (Indigenous people) families play in caring for older relatives. This study explored the centrality of culture in how Māori extended families (whānau) in Aotearoa New Zealand interpret and enact family-base...
Thoresen, Lisbeth Røberg, Anne-Stine Bergquist
Published in
Palliative Care and Social Practice
Background: To contribute with knowledge to health policy development, this article presents a critical discourse analysis of two Norwegian official reports on palliative care published in 1999 and 2017. Methods: We identify, describe and discuss how linguistic features in policy documents contribute to and engender a distinct change from 1999 to 2...
Allatt, Peter Kim, Daniel D.M. Hébert, Philip
Published in
Palliative Care and Social Practice
Since 2016, when medical assistance in dying (MAiD) became legal in Canada, healthcare professionals (HCPs) have become familiar with exploring and acting upon patients’ wishes to hasten death (WTHD). In contrast to MAiD, the literature on the voluntary stopping of eating and drinking (VSED) is very limited and there are no standards of practice or...
