Larsson, Birgitta Jakobsson Ozanne, Anneli Nordin, Karin Nygren, Ingela
Published in
Palliative & supportive care
Relatives are often central in caring for patients with amyotrophic lateral sclerosis (ALS), involving considerable physical, emotional, and social challenges. The aim of this study was to describe individual quality of life (iQoL) among relatives of patients with ALS, from diagnosis through disease progression. A total of 31 relatives were include...
Julião, Miguel Sobral, Maria Ana Johnston, Bridget Lemos, Ana Raquel Almeida, Sara Antunes, Bárbara Dönmez, Çiğdem Fulya Chochinov, Harvey Max
Published in
Palliative & supportive care
Dignity therapy (DT) is a brief, individualized intervention, which provides terminally ill patients with an opportunity to convey memories, essential disclosures, and prepare a final generativity document. DT addresses psychosocial and existential issues, enhancing a sense of meaning and purpose. Several studies have considered the legacy topics m...
Kim, Sun Hyun Suh, Sang-Yeon Yoon, Seok Joon Park, Jeanno Kim, Yu Jung Kang, Beodeul Park, Youngmin Kwon, Jung Hye Park, Kwonoh Kim, Jung-Young
...
Published in
Palliative & supportive care
Several studies supported the usefulness of "the surprise question" in terms of 1-year mortality of patients. "The surprise question" requires a "Yes" or "No" answer to the question "Would I be surprised if this patient died in [specific time frame]." However, the 1-year time frame is often too long for advanced cancer patients seen by palliative c...
Sağlam, Zeynep Koç, Zeliha
Published in
Palliative & supportive care
The aim of this methodological study was to test the validity and reliability of the Turkish version of the Family Inventory of Needs. The universe of the study consisted of 300 family members of inpatients hospitalized in the palliative care units of four hospitals in northern Turkey between April 12, 2019 and December 30, 2019. The translation pr...
Rothstein, Harry D
Published in
Palliative & supportive care
Stocklassa, Stephanie Zhang, Silja Mason, Stephen Elsner, Frank
Published in
Palliative & supportive care
Health professionals in China tend to avoid open communication with terminally ill cancer patients concerning their diagnosis and prognosis. This review aims to explore Chinese cultural beliefs and attitudes concerning disclosure and death among health professionals and cancer patients in China and to investigate preferences of terminally ill cance...
Schoppee, Tasha M Scarton, Lisa Bluck, Susan Yao, Yingwei Keenan, Gail Handzo, George Chochinov, Harvey M Fitchett, George Emanuel, Linda L Wilkie, Diana J
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Published in
Palliative & supportive care
Dignity Therapy (DT) has been implemented over the past 20 years, but a detailed training protocol is not available to facilitate consistency of its implementation. Consistent training positively impacts intervention reproducibility. The objective of this article is to describe a detailed method for DT therapist training. Chochinov's DT training se...
Rousseau, Paul
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Palliative & supportive care
Lichtenthal, Wendy G Viola, Martin Rogers, Madeline Roberts, Kailey E Lief, Lindsay Cox, Christopher E Brewin, Chris R Xu, Jiehui Cici Maciejewski, Paul K Pan, Cynthia X
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Published in
Palliative & supportive care
The objectives of this study were to develop and refine EMPOWER (Enhancing and Mobilizing the POtential for Wellness and Resilience), a brief manualized cognitive-behavioral, acceptance-based intervention for surrogate decision-makers of critically ill patients and to evaluate its preliminary feasibility, acceptability, and promise in improving sur...
de Boer, A F de Voogd, X Meershoek, A Suurmond, J L
Published in
Palliative & supportive care
Preserving personal dignity is an important aim of palliative care. Little is known about how physicians perceive and preserve dignity of patients from non-western migration backgrounds. Insight in this is important given the increased demand for culturally sensitive palliative care. To gain insight in how Dutch physicians perceive and preserve dig...
