Sinclair, Craig Gersbach, Kate Hogan, Michelle Blake, Meredith Bucks, Romola Auret, Kirsten Clayton, Josephine Stewart, Cameron Field, Sue Radoslovich, Helen
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Published in
Journal of bioethical inquiry
Supported decision-making has been promoted at a policy level and within international human rights treaties as a way of ensuring that people with disabilities enjoy the right to legal capacity on an equal basis with others. However, little is known about the practical issues associated with implementing supported decision-making, particularly in t...
Friedrich, Annie B.
Published in
Journal of Bioethical Inquiry
In many ways, grief is thought to be outside the realm of bioethics and clinical ethics, and grieving patients or family members may be passed off to grief counselors or therapists. Yet grief can play a particularly poignant role in the ethical encounter, especially in cases of brain death, where the line between life and death has been blurred. Al...
Nordgren, Anders
Published in
Journal of bioethical inquiry
Human germline gene editing is often debated in hypothetical terms: if it were safe and efficient, on what further conditions would it then be ethically acceptable? This paper takes another course. The key question is: how can scientists reduce uncertainty about safety and efficiency to a level that may justify initiation of first-time clinical tri...
Fisher, Jill A Monahan, Torin Walker, Rebecca L
Published in
Journal of bioethical inquiry
This article empirically examines how healthy volunteers evaluate and make sense of the risks of phase I clinical drug trials. This is an ethically important topic because healthy volunteers are exposed to risk but can gain no medical benefit from their trial participation. Based on in-depth qualitative interviews with 178 healthy volunteers enroll...
Färdow, Joakim Broström, Linus Johansson, Mats
Published in
Journal of bioethical inquiry
The burdens of resource constraints in publicly funded healthcare systems urge decision makers in countries like Sweden, Norway and the UK to find new financial solutions. One proposal that has been put forward is co-payment-a financial model where some treatment or care is made available to patients who are willing and able to pay the costs that e...
Mortimer, Rose
Published in
Journal of bioethical inquiry
This paper discusses the findings of qualitative research that examined the accounts of five "mostly recovered" ex-patients who had experienced transition between two or more eating disorder diagnoses. This study found that, in the minds of participants, the different diagnostic labels were associated with various good or bad character traits. This...
Kemper, James M. Gyngell, Christopher Savulescu, Julian
Published in
Journal of Bioethical Inquiry
Preimplantation genetic diagnosis (PGD) allows the detection of genetic abnormalities in embryos produced through in vitro fertilization (IVF). Current funding models in Australia provide governmental subsidies for couples undergoing IVF, but do not extend to PGD. There are strong reasons for publicly funding PGD that follow from the moral principl...
Miquel, Eva Esquerda, Montserrat Real, Jordi Espejo, Mariola Pifarré, Josep
Published in
Journal of Bioethical Inquiry
Decision-making capacity in children and adolescents in healthcare requires thorough assessment: the minor's maturity, understanding of the decision, risk of the situation and contextual factors needs to be explored. The intention was to design and validate a test—the Maturtest—to assess the maturity of minors in decision-making processes in health...
Teixeira da Silva, Jaime A Dobránszki, Judit Bhar, Radha Holla Mehlman, Charles T
Published in
Journal of bioethical inquiry
Editors have increasing pressure as scholarly publishing tries to shore up trust and reassure academics and the public that traditional peer review is robust, fail-safe, and corrective. Hidden conflicts of interest (COIs) may skew the fairness of the publishing process because they could allow the status of personal or professional relationships to...
Burke, Lucy
Published in
Journal of Bioethical Inquiry
This essay discusses the use of analogies drawn from the Holocaust in cultural representations and critical scholarship on dementia. The paper starts with a discussion of references to the death camp in cultural narratives about dementia, specifically Annie Ernaux’s account of her mother’s dementia in I Remain in Darkness . It goes on to develop a ...
