Fox, Siobhán Foley, Tony Cahill, Suzanne Kilty, Caroline
Published in
Dementia (London, England)
Receiving a diagnosis of young onset dementia is particularly distressing; the person under 65 years is often in employment, with financial commitments, young children, and an active social life. Some of the stress experienced by younger people experiencing cognitive changes can be reduced by an early and accurate diagnosis, but this is contingent ...
Maxfield, Molly Peckham, Allie James, Dara L Lathrop, Laura Fiske, Amy
Published in
Dementia (London, England)
Alzheimer's disease and related dementias are prevalent, highly impactful, and feared diagnoses. A mixed methods study using semi-structured interviews was conducted to clarify causes of dementia-related anxiety. Fifty community-dwelling adults aged 58 to 89 (M = 70.92, SD = 6.08) were recruited from a university participant registry and Memory Cli...
Zhang, Xiubin Clarke, Charlotte Ding, Rong
Published in
Dementia (London, England)
Dementia is recognized globally as a massive burden on public health and wider society. It is a major cause of disability and mortality amongst older people. China has the largest population of people with dementia worldwide, accounting for approximately 25% of the entire global population of people with dementia. The study investigated the perceiv...
MacRitchie, Jennifer Floridou, Georgia A Christensen, Justin Timmers, Renee de Witte, Luc
Published in
Dementia (London, England)
For older adults living with mild cognitive impairment or dementia, creative arts-based activities can offer many benefits from enjoyment as leisure/recreation to an avenue to maintain cognitive, social and emotional wellbeing. With growing interest and recognition that technology could have potential to assist in delivering these activities in mor...
Novek, Sheila Menec, Verena
Published in
Dementia (London, England)
People living with young onset dementia and their families have significant support needs, but experience difficulties accessing services. This study explored the process of accessing community-based services drawing on semi-structured interviews with people living with dementia, family members and providers in Winnipeg, Canada. Data analysis invol...
Jones, Lesley Cullum, Nicky Watson, Ruth Keady, John
Published in
Dementia (London, England)
In the United Kingdom, the use of the terms 'complex' and 'complexity' alongside dementia is reflected in a number of policy and practice documents. However, there is a lack of evidence that explores how complexity is perceived, constructed and experienced by people with dementia, family carers and practitioners working in the NHS dementia inpatien...
Stedje, Kristi Kvamme Kjersti, Tone Ks Johansson, Stensæth, Karette A Odell-Miller, Helen Bukowska, Anna Tamplin, Jeanette Wosch, Thomas Baker, Felicity Anne
Published in
Dementia (London, England)
The aim of this systematic review is to identify factors that influence relationship quality in couples living with dementia. Previous research has shown how maintaining a positive spousal relationship quality is important for quality of life and coping for both the caregiver and the person with dementia. Knowledge of influential factors could cont...
Glassner, Ashlie A Masoud, Sara S Mendoza, Mayra Y Rhodes, Shanae White, Carole L
Published in
Dementia (London, England)
Background Like so many others, persons living with dementia have been greatly impacted by the COVID-19 pandemic. A Stakeholder Advisory Council set a research priority to learn more about the experiences of families living with dementia during COVID-19. Methods This study was conducted using a multi-method design. Online surveys were completed by ...
Bruinsma, Jeroen Peetoom, Kirsten Verhey, Frans Bakker, Christian de Vugt, Marjolein
Published in
Dementia (London, England)
The behavioral variant of frontotemporal dementia is characterized by profound changes in personality and behavior that often start before the age of 65 years. These symptoms impact family life, particularly if (adult) children live at home. In research on young-onset dementia or frontotemporal dementia, the family itself is hardly ever a unit of a...
Kilty, Caroline Cahill, Suzanne Foley, Tony Fox, Siobhán
Published in
Dementia (London, England)
People with young onset dementia face unique challenges. Notably, at time of symptom presentation, many people affected by young onset dementia are still employed with significant financial obligations. The aim of this study was to explore the specific impact that young onset dementia has on continued employment and finances and to identify ways to...
