Sari, Yulisna Mutia Hill, Keith D Burton, Elissa Lee, Den-Ching A Lalor, Aislinn F
Published in
Dementia (London, England)
Participating in physical activity is beneficial for older people with dementia. Little is known however about the perceptions of people living with dementia undertaking an online-delivered exercise program. This study aimed to explore the experiences and perceptions of older people with dementia and their carers in Indonesia participating in an on...
Haufe, Marc Leget, Carlo Potma, Marieke Teunissen, Saskia
Published in
Dementia (London, England)
People with early-stage dementia could benefit greatly from on-going spiritual support. However, health care professionals working in dementia care often do not have a clear idea of what such support might entail. There is a lack of tools that can help professionals provide such support. The Diamond conversation model used in palliative care could ...
Fox, Siobhán Foley, Tony Cahill, Suzanne Kilty, Caroline
Published in
Dementia (London, England)
Receiving a diagnosis of young onset dementia is particularly distressing; the person under 65 years is often in employment, with financial commitments, young children, and an active social life. Some of the stress experienced by younger people experiencing cognitive changes can be reduced by an early and accurate diagnosis, but this is contingent ...
Chan, On-Fung Chui, Cheryl Hiu-Kwan Wong, Gloria Hoi-Yan Lum, Terry Yat-Sang
Published in
Dementia (London, England)
Dementia care creates ethical and legal dilemmas due to the struggle to balance the quality of care and personhood. Disagreement and conflict in caregiving relationships are common. However, limited attention has been given to particular stressful circumstances, such as care practice and decision disagreements. Moreover, the cultural context of per...
Conway, Emma MacEachen, Ellen Middleton, Laura McAiney, Carrie
Published in
Dementia (London, England)
People with dementia are excluded from research due to methodological challenges, stigma, and discrimination. Including perspectives of people with dementia across a spectrum of abilities is essential to understanding their perspectives and experiences. Engaging people living with dementia in qualitative research can require adaptation of methods.Q...
Shatnawi, Eman Steiner-Lim, Genevieve Z Karamacoska, Diana
Published in
Dementia (London, England)
People with dementia from culturally and linguistically diverse backgrounds often face poor health and social outcomes such as stigma, depression, and reduced help seeking behaviours. Dementia friendly communities have been shown to reduce stigma, and the gap in health and social outcomes for people impacted by dementia. Despite the large presence ...
Taylor, Jean O Child, Claire E Sharma, Rashmi K Asirot, Mary Grace Miller, Lyndsey M Turner, Anne M
Published in
Dementia (London, England)
Little is known about the decision-making processes around seeking more supportive care for dementia. Persons with dementia are often left out of decision-making regarding seeking more supportive care as their dementia progresses. This paper provides a description of findings from the Decision-making in Alzheimer's Research project (DMAR) investiga...
Middleton, Laura E Pelletier, Chelsea A Koch, Melissa Norman, Rebekah Dupuis, Sherry Astell, Arlene Giangregorio, Lora M Hart, Felicia Heibein, William Hughes, Crystal
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Published in
Dementia (London, England)
Persons with dementia have the right to equal inclusion in rehabilitation, including physical activity. However, the perspectives of persons with dementia are rarely integrated into decision-making related to physical activity programming, services, and supports. Here, we describe the participatory action research (PAR) approach used to develop the...
BeLue, Rhonda Kuzmik, Ashley Dix, Michaila Luckett, Camille Paudel, Anju Resnick, Barbara Boltz, Marie
Published in
Dementia (London, England)
The Family-centered Function Focused Care (Fam-FFC) intervention, is a nurse-family care partnership model aimed to improve the physical and cognitive recovery in hospitalized persons living with Alzheimer's Disease Related Dementias (ADRD) while improving the care partner's experiences. Discussions of patients' needs and preferences between nurses...
Wheat, Hannah Griffiths, Sarah Gude, Alex Weston, Lauren Quinn, Cath Morgan-Trimmer, Sarah Oh, Tomasina M Musicha, Crispin Greene, Leanne Clark, Mike
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Published in
Dementia (London, England)
Practitioner understanding of patients' preferences, wishes and needs is essential for personalised health care i.e., focusing on 'what matters' to people based on their individual life situation. To develop such an understanding, dementia practitioners need to use communication practices that help people share their experiences, preferences, and p...
