Siu, Henry Yu-Hin Steward, Nicole Peter, Jessica Cooke, Laurel Arnold, Donald M Price, David
Published in
Chronic illness
Objective Medically complex patients experience fragmented health care compounded by long wait times. The MedREACH program was developed to improve access and overall system experience for medically complex patients. Program description MedREACH is a novel primary-tertiary care collaborative demonstration program that features community nursing out...
Rush, Kathy L Oelke, Nelly D Shay, Matt Pedersen, Chloe
Published in
Chronic illness
Objectives Obtaining the voices of older adult patients with atrial fibrillation (AF) about their health and healthcare has become increasingly important in providing quality care. The purpose of this study was to understand the unique contributions of photographs in the healthcare journeys of rural living older adults with AF. Methods As part of a...
Vanstone, Meredith Rewegan, Alex Brundisini, Francesca Giacomini, Mita Kandasamy, Sujane DeJean, Deirdre
Published in
Chronic illness
Objectives Diet modification is an important part of the prevention and treatment of type 2 diabetes, but sustained dietary change remains elusive for many individuals. This paper describes and interprets the barriers to diet modification from the perspective of people with type 2 diabetes, paying particular attention to the experiences of people w...
Perzynski, Adam T Ramsey, Riane K Colón-Zimmermann, Kari Cage, Jamie Welter, Elisabeth Sajatovic, Martha
Published in
Chronic illness
Objectives This exploratory study identifies barriers and facilitators to self-management to inform future epilepsy self-management interventions for persons who have epilepsy complicated by co-morbid mental health conditions and serious medical events. Methods Focus group methods were used in a series of community advisory board meetings. Analysis...
Hinton, Denise Kirk, Susan
Published in
Chronic illness
Background There is growing recognition that multiple sclerosis is a possible, albeit uncommon, diagnosis in childhood. However, very little is known about the experiences of families living with childhood multiple sclerosis and this is the first study to explore this in depth. Objective Our objective was to explore the experiences of parents of ch...
Jenkinson, Amanda Cantrell, Mary A
Published in
Chronic illness
Objectives This literature review summarizes research relevant to the meaning of inner strength in females living with a chronic illness. This review also examined studies that have used The Inner Strength Questionnaire to examine inner strength among chronically ill females. Methods Using the search terms inner strength and women, CINAHL, PubMed, ...
Solomi, Victoria L Casiday, Rachel E
Published in
Chronic illness
Objectives To examine the subjective experiences of spousal carers, focusing on positive, negative, and relational aspects of this role. Methods Mixed-methods exploratory study involving questionnaires ( N = 40) and in-depth interviews ( N = 8) with spousal carers in the southwest of England. Results Participants used a combination of negative and ...
Morris, Rebecca L Sanders, Caroline
Published in
Chronic illness
Objectives Recent literature has demonstrated the nature and importance of social networks. This study aimed to understand how support needs of people with long-term conditions change over time and how this influences their ability to self-manage. Methods A longitudinal qualitative design was used to explore changes in individual's social networks ...
Vijayasingham, Lavanya
Published in
Chronic illness
Objectives Chronic illness is known to disrupt and redirect the usual course of work trajectories. This article aims to portray the longitudinal course of negotiating work after multiple sclerosis. Methods Using therapy and personal journals to reconstruct memories and experience, an autoethnography is produced and narrated within Campbell's "Hero'...
Oldfield, Margaret MacEachen, Ellen MacNeill, Margaret Kirsh, Bonnie
Published in
Chronic illness
Background Advice on fibromyalgia, a chronic illness primarily affecting women, often presents it as incompatible with work and rarely covers how to remain employed. Yet many women do. Objectives We aimed to understand how these women, their family members, and workmates portrayed employees with fibromyalgia, and how these portrayals helped women r...
